#RAREis Scholarship
Scholarship Sponsored by EveryLife Foundation for Rare Diseases
Introduction
Living with a rare disease often involves frequent medical appointments, intensive treatment plans, hospital stays, and increased exposure risks. Although advances in diagnosis and care have extended life expectancy and improved quality of life, people with rare conditions still encounter obstacles to reaching common life goals. To help address these gaps, the EveryLife Foundation for Rare Diseases created the #RAREis Scholarship Fund to support adults with rare diseases in furthering their education.
Award details and timeline
With support from Amgen, the EveryLife Foundation for Rare Diseases will award one-time $5,000 scholarships to 104 recipients in 2025. Applications will be accepted from March 18 through April 28, 2025.
Eligibility
- Age and residency: Applicants must be at least 17 years old and reside in the United States.
- Diagnosis: A physician must have diagnosed the applicant with a rare disease, regardless of current treatment. Applicants will be required to submit a Diagnosis Verification Form completed by a physician. Individuals without a formal diagnosis may still apply if a physician completes the Diagnosis Verification Form on their behalf. A Spanish version of the Diagnosis Verification Form is available.
- Education plans: Applicants must intend to enroll (full-time or part-time) in undergraduate or graduate-level study at an accredited two- or four-year college, university, or vocational-technical/trade school for the Fall 2025 semester. There is no minimum credit-hour requirement to qualify as part-time. Enrollment may be for degree-seeking or other eligible academic/certification programs.
What counts as a rare disease
A condition is considered rare if it affects fewer than 200,000 people in the United States. If you are unsure whether your condition meets this definition, consult resources such as the National Institutes of Health’s Genetic and Rare Diseases Information Center (GARD) and/or the National Organization for Rare Disorders (NORD).